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Officers and DirectorsCurrent Directors:
Past Directors:
Samantha J. Scolamiero, President
(Founding Director)
Personal Statement: There is too much that I want to say in this small space. will most likely elaborate the future. For nowlet fact Healing Exchange BRAIN TRUST has come into being speak itself. ONWARD!!! Nancy Conn-Levin, M.A., Director
Personal Statement: With both personal and professional experience in this field, I am especially pleased to have the opportunity to work with T.H.E. BRAIN TRUST. By establishing a community of those affected by brain disorders, we can improve access to health information and resources while providing much needed advocacy, assistance and encouragement. The possibilities of online support networks are especially meaningful to me, as a means of eliminating isolation (whether geographic or circumstantial) and reducing fear. Coping with a serious neurological diagnosis is challenging for anyone, whether they are patients, family members or caregivers. By communicating with others who share our unique concerns, we can strengthen one another and face these challenges together. George Hunter,
B.S.B.A., Director
Personal Statement: In March 1998, while attending the National Brain Tumor Foundation conference in San Francisco, I met Samantha Scolamiero, a pioneer in Information Technology and Development designed for the express purpose of empowering Brain Tumor Survivors and their caregivers with information. At Samantha’s urging, I joined the BRAINTMR list in April 1998 and quickly discovered the opportunities that the list offered to exchange experience, information, hope and support. This became a life-altering experience for me, and allowed me to make something positive out of the horrible disease that has affected my daughter. The satisfaction of being able to offer hope and support to someone new on the BRAINTMR list, and reaching out to someone in that state of pure shock and bewilderment so common to brain tumor diagnosis, is as fulfilling as any human experience I have had. Samantha asked me to join the Board of Directors for T.H.E. BRAIN TRUST, and I am proud to work with the rest of the Directors to fulfill the mission of the organization – promoting and improving communication for all neurological disorders, particularly brain tumors. Rebecca Libutti,
L.U.T.C.F., Director
Personal Statement: It is my hope to gather the long term survivors from all corners of the globe to one central site, in order to create a center of hope, and a forum for survival.
Personal Statement:Not yet available Past:
Jayne Butler, B.
Sc.N., M. Ed. (Founding Director)
Personal Statement: The mission of T.H.E. BRAIN TRUST is important to me because I have a child with hydrocephlaus. I know first hand the importance of educating myself about hydrocephalus through contact with professionals who treat and research hydrocephalus and people who live with it. I believe that the use of new media offers a wonderful opportunity for people to educate themselves about their health conditions so that they can make the best possible health care decisions for themselves. Working with T.H.E. BRAIN TRUST allows me to help establish environments where this happen. Scott Kaplowitch,
CPA, Treasurer
Personal Statement: not yet available Ilene Lewis, Clerk
Personal Statement: not yet available Arky Pollokoff,
M.H.A., C.P.A (Founding Director)
Personal Statement: T.H.E. BRAIN TRUST is an organization that does have a unique place amongst the various brain tumor organizations. It is the only group that has as one of its primary objectives, the goal of connecting patients, survivors, families, friends and professional caregivers through internetworking. Doris Rosenberg,
B.A., B.S.W., M.S.W., Director
Personal Statement: Fear and ignorance are great barriers to healing. Talking about it moves us closer to healing. Elliot Rosenberg,
B.A., LLB, Director
Personal Statement: Whenever somebody says, "It can’t be done," we must take those words as a personal challenge and prove that "it can be done." Dr. Stephen B. Tatter,
M.D., Ph.D. (Founding Director)
Personal Statement: In an interview with Dr. Tatter, Samantha noted him observe that some doctors don't feel that the patient and family need to know all the details about their treatment and condition. They might argue that it's more important have a good doctor and treatment than information. Dr. Tatter has a broader vision. While a neurosurgical resident at the Massachusetts General Hospital he built some of the first web pages with neurosurgical information geared toward patients. At national conferences he networks with patients like Clare Patterson president of the Trigeminal Neuralgia Association (TNA) to help them learn about the benefits of communicating over the internet. The TNA web page he created made national news as it helped a child from overseas find diagnosis and treatment in the US. However, good treatment, an excellent doctor, and accurate information isn't always enough he says, "Sometimes all you can do as a physician is be a witness to a patient's suffering or passage." It takes a very special person to make this kind of revelation about his role, that's why he was invited to serve on the Board of Directors of The Healing Exchange BRAIN TRUST. Our mission of communicating about the many levels of healing is already a natural part of his practice. Eric T. Wong, M.D.,
Direcctor
Personal Statement: Not yet available |
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