About The Organization

WHAT does T.H.E. BRAIN TRUST do?

• We help people communicate about brain disorders via the Internet to promote a healing exchange of information and support.

• original detailed mission statement

WHO Participates?

• Patients/survivors affected by neurological disorders
  (from AVM to xanthroastrocytoma) (brain attacks to brain tumors)

• their families, supporters and caregivers

• health care professionals and researchers

• interested members of the general public

• The organization is driven exclusively by volunteers

HOW?

• Our primary services are delivered via email support groups on the Internet.

• We also train people how to use the Internet to get information and support.

• Our funding comes mainly from individuals in the general public, but occasionally from foundations and companies.

WHEN and WHERE?

• Our online services run 24 hours a day.

• We do training workshops at conferences and in clinics.

• People from all over the world who have access to email are able to participate.

WHY?

We believe:

• Informed health care consumers may obtain better care.

• Patients and families who have good psychosocial support may live longer and have a better quality of life.

• Online support may be easier than face to face.

• Support is available 24 hours a day in ways not available without technology.

• There are no geographical boundaries when it comes to support.

• Health professionals who participate learn patient issues.

Note:
At this time most of our resources serve those interested in brain tumors, however, The Healing Exchange BRAIN TRUST was formed to address brain issues of all types because there is incredible potential for a healing exchange of information and support about brain disorders regardless of one's specific primary medical condition. There are many common secondary medical and social issues for people dealing with brain disorders.