The Ependyparents online support group is a private email list for parents of children with Ependymoma. We are a group of parents looking for knowledge and information on behalf of our children who are too young to make decisions.
Group communication is by a private email list hosted by T.H.E. BRAIN TRUST, a 501(c)(3) nonprofit organization specializing in internet based and patient oriented brain tumor support groups.
About The List
Approximate Group Size: 125
Average Message Frequency: about 5 per week