Meningioma Online Support Group SUMMARY
The Meningioma online support group is a private email list for men and women
with Meningioma. Messages are written in English. The
messages are nearly always specific to the topic of living with meningioma.
Discussions include: treatment options, surgery, side-
effects, coping tips, emotional impact, the latest research, information on
conferences, and much more. The general tone is supportive, respectful and informative.
Group communication is by a private email list hosted by T.H.E. BRAIN TRUST, a 501(c)(3) nonprofit organization specializing in internet based and patient oriented brain tumor support groups.
DEMOGRAPHICS
While most members live in the USA
members live all over the world. We have members from: Australia, Bermuda, Brazil,
Canada, England,
Hungary, Israel, The Netherlands, New Zealand, and The United Kingdom. Most
are meningioma survivors, but some family members and
friends also subscribe.
ABOUT THE LIST
Approximate Group Size: over 315 subscribers.
Average Number of Messages per day: 2-10 messages per day.
ABOUT THE FACILITATOR
The acting facilitator is Samantha
Scolamiero, founder of T.H.E. BRAIN TRUST. We are assembling a group of co-facilitators.
CONTACT THE FACILITATOR TO BECOME A MEMBER