Support Groups

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Special Interest BRAIN TRUST Groups

Guidelines for Posting

Special Interest On-line Support Groups

The following is a list of support and information groups run by The Healing Exchange BRAIN TRUST. These are special interest online community email groups. They operate a bit differently than the "big" BRAINTMR list. To Join one of these groups send a message to the list captain specified below. More detailed information about each group including a description of the group, its membership and message volume may be found below the brief listings as it is available.

Adult BSG	Adult Brainstem Glioma
List facilitator	Jennifer Gutierrez

 

Adultependy	For adults with ependymoma
List Captain	Bruce Blount -- Read more about the group, or ask a question

BFNC & You	For family and care-givers of children with Benign Familial Neonatal Convulsions (BFNC). Researchers and clinicians are also welcome.
List facilitator	Allie Gillies - Read more about the group, or ask a question

BTCaregivers	Caregivers of brain tumor patients
List facilitator	Sandra Norton -- Read more about the group, or ask a question

 

BTHealthykids	For families where one member has a brain tumor and there are healthy active children
List facilitator	Sandra Norton -- Read more about the group,or ask a question

 

Craniopharyngioma	For craniopharyngioma patients, caregivers and medical professionals
List facilitator	David McCorkle -- Contact this Facilitator

 

DNET	Dysembryoplastic Neuro Epithelial Tumors
List facilitator	Toni Levinson -- Contact this Facilitator

 

Ependyparents	Parents of Children with ependymoma
List facilitator	Jill Dombrowski -- Read more about the group

Lymphoma	CNS Lymphoma
List facilitator	Barry Gates -- Read more about this group

 

Meningioma	For men and women with meningioma
List facilitator	Samantha Scolamiero (acting facilitator) -- Read more about the group

 

Oligodendrogliomas	Support and information for anyone affected by an Oligodendroglioma
List facilitator	Tom Stoddard -- Read more about this group

 

Spinetmr	Information and Support about Spinal Tumors
List facilitator	Bruce Blount -- Read more about the group

 

Young Adults	A group for teens and young adults with brain tumors
List facilitator	Giselle Tejeda and Jennifer Gutierrez -- Read more about this group